September 2023

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Congenital Muscular Dystrophy (CMD) affected individuals Kelly Berger and Avery Roberts are making their voices heard. Together they hope to tackle misconceptions surrounding disability and give a loud voice to the oft-forgotten rare disease community. CMD is a rare genetic disorder which causes the muscles to break down faster than they can repair or grow, which leaves Berger and Roberts to rely on wheelchairs as their main source of mobility and independence.

Posted on 12/09/2023


Latest Comments

16/04/2024 | José Díaz
Invaluable resource! ¡Tu guía sobre el uso de GoFundMe para gastos de movilidad ofrece consejos p...

18/02/2024 | Jamie Elliott
I played in a wc hybrid tournament, Mid South, last yr. He is an amazing player and I’m sure he i...

08/02/2024 | Elaine Cook
Great article written by a wonderful Christain man. You're such an inspiration!!!

07/02/2024 | Diana Weaver
I enjoyed reading your article. I'm thankful I had the opportunity to play with you as my pi...

10/01/2024 | Mary Goldberg
Thanks to Tyler for sharing the awesome opportunities! As the MRT Program Director, I'm always ha...

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